{"id":1929,"date":"2019-04-24T09:30:33","date_gmt":"2019-04-24T09:30:33","guid":{"rendered":"https:\/\/perseivivarium.com\/blog\/?p=1929"},"modified":"2024-02-09T09:14:12","modified_gmt":"2024-02-09T09:14:12","slug":"3rd-patient-experience-congress","status":"publish","type":"post","link":"https:\/\/perseivivarium.com\/blog\/3rd-patient-experience-congress\/","title":{"rendered":"3rd Patient Experience Congress: \u201cPatient experience as central element in healthcare improvement\u201d"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;3.19.8&#8243;][et_pb_row custom_margin=&#8221;-70px||&#8221; _builder_version=&#8221;3.19.8&#8243;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.19.8&#8243; parallax=&#8221;off&#8221; parallax_method=&#8221;on&#8221;][et_pb_text _builder_version=&#8221;3.19.8&#8243;]<\/p>\n<h1><b>3rd Patient Experience Congress: &#8220;<\/b><b>Patient experience as central element in healthcare improvement&#8221;<\/b><\/h1>\n<p><span>by Jessica Herraiz | April<\/span><span class=\"published\">, 24 2019<\/span><span>\u00a0<\/span><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;3.19.8&#8243;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.19.8&#8243; parallax=&#8221;off&#8221; parallax_method=&#8221;on&#8221;][et_pb_image src=&#8221;https:\/\/perseivivarium.com\/blog\/wp-content\/uploads\/2019\/04\/Experiencia-Paciente-1.png&#8221; _builder_version=&#8221;3.19.8&#8243; custom_margin=&#8221;-15px||&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row custom_margin=&#8221;5px||&#8221; _builder_version=&#8221;3.19.8&#8243;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.19.8&#8243; parallax=&#8221;off&#8221; parallax_method=&#8221;on&#8221;][et_pb_text _builder_version=&#8221;3.19.8&#8243; custom_margin=&#8221;-15px||&#8221;]<\/p>\n<p><a href=\"https:\/\/perseivivarium.com\/\" target=\"_blank\" rel=\"noopener noreferrer\"><span style=\"font-weight: 400;\">Persei vivarium<\/span><\/a><span style=\"font-weight: 400;\"> was at the <\/span><b>3rd Patient Experience Congress<\/b><span style=\"font-weight: 400;\"> organized by <\/span><a href=\"https:\/\/iexp.es\/\" target=\"_blank\" rel=\"noopener noreferrer\"><span style=\"font-weight: 400;\">IEXP<\/span><\/a><span style=\"font-weight: 400;\"> (Institute for Patient Experience), where there was a discussion of clinical and nonclinical needs of the patient in <\/span><span style=\"font-weight: 400;\">as<\/span>\u00a0<span style=\"font-weight: 400;\">their<\/span><span style=\"font-weight: 400;\"> journey through a disease.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Thanks to this forum, we heard in person the opinions of all the agents involved in the management of oncological diseases. The session concentrated on the <\/span><b>empowerment of the patients<\/b><span style=\"font-weight: 400;\"> and the importance of their nonclinical needs and experiences, as well as how technology helps to take these issues into account, thus improving the healthcare process for the oncology patient.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">In this way, digital health has a lot to contribute, helping to optimize the patient\u2019s treatment, and facilitating the inclusion of their point of view throughout the process.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The impact of new oncological therapies on patient improvement was also discussed. It is hoped that, within a few years, these therapies will transform the approach to diseases, so it will be necessary to <\/span><b>systematize evaluation of the data<\/b><span style=\"font-weight: 400;\"> and to provide results that contribute additional value by reporting the <\/span><b>patient\u2019s daily experience.<\/b><\/p>\n<p><span style=\"font-weight: 400;\">So it\u2019s not enough to report on effectiveness and safety! \u00a0Now it is <\/span><span style=\"font-weight: 400;\">also<\/span> <span style=\"font-weight: 400;\">important<\/span><span style=\"font-weight: 400;\"> to introduce <\/span><b>real life data and patient quality of life <\/b><span style=\"font-weight: 400;\">into the value equation. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">At <\/span><strong>Persei vivarium<\/strong><span style=\"font-weight: 400;\"> we firmly believe that the patient\u2019s role is fundamental to this process, as <\/span><span style=\"font-weight: 400;\">their<\/span><span style=\"font-weight: 400;\"> point of view contributes value to the management of the disease, helping to improve the personalization of medicine.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">For this reason, we are currently focusing our work on our patient app<strong>,<\/strong>\u00a0<\/span><a href=\"http:\/\/caaring.com\/\" target=\"_blank\" rel=\"noopener noreferrer\"><span style=\"font-weight: 400;\">Caaring<\/span><span style=\"font-weight: 400;\">\u00ae<\/span><span style=\"font-weight: 400;\"><\/span><\/a><span style=\"font-weight: 400;\">, for <\/span><b>bidirectional communication between the patient and the doctor<\/b><span style=\"font-weight: 400;\">. We are also developing a new functionality that will allow patients to be more involved, thanks to their access to the information about the disease and the activities that will help them to follow up in an appropriate way. Relevant information about a disease is positively valued by the patient, as 71% of them agree that they are not knowledgeable about where they can find reliable, quality information.<\/span><\/p>\n<p><a href=\"http:\/\/caaring.com\/\"><span style=\"font-weight: 400;\"><\/span><\/a><strong>Caaring\u00ae<\/strong>\u00a0allows the creation of different Patient Programs and the manegement of the patient experience coming from Real Life Data. It helps patients<b>\u00a0with remote monitoring of the disease<\/b><span style=\"font-weight: 400;\">, providing them peace of mind and also guaranteeing data security, which is one of their current technological concerns.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Finally, at the session they<\/span><span style=\"font-weight: 400;\">\u00a0reflected on the three key factors that must be taken into account: empathizing with and understanding the patient\u2019s situation, including the patient in the decision-making process and, finally, <\/span><b>relying on technology, the key partner in the patient\u2019s empowerment.<\/b><\/p>\n<p><a href=\"https:\/\/twitter.com\/hashtag\/IIICongresoIEXP?src=hash\" target=\"_blank\" rel=\"noopener noreferrer\">#IIICongresoIEXP\u00a0<\/a><a href=\"https:\/\/twitter.com\/search?q=%23bevivarium&amp;src=typd\" target=\"_blank\" rel=\"noopener noreferrer\">#bevivarium<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;3.0.48&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; custom_padding=&#8221;0|0px|27px|0px|false|false&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.0.47&#8243; parallax=&#8221;off&#8221; parallax_method=&#8221;on&#8221;][et_pb_text _builder_version=&#8221;3.19.8&#8243;]<\/p>\n<h4>Share<\/h4>\n<p>[\/et_pb_text][et_pb_code _builder_version=&#8221;3.19.8&#8243; link_option_url_new_window=&#8221;on&#8221;][\/et_pb_code][et_pb_team_member name=&#8221;Jessica Herr\u00e1iz &#8221; position=&#8221;Business Development&#8221; image_url=&#8221;https:\/\/perseivivarium.com\/blog\/wp-content\/uploads\/2019\/04\/Jessica-Herraiz-.jpeg&#8221; _builder_version=&#8221;3.19.8&#8243; link_option_url=&#8221;https:\/\/www.linkedin.com\/in\/jessica-herraiz-escribano\/&#8221; link_option_url_new_window=&#8221;on&#8221;]<\/p>\n<p>Persei vivarium<\/p>\n<p>[\/et_pb_team_member][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Persei vivarium was at the 3rd Patient Experience Congress organized by IEXP (Institute for Patient Experience), where there was a discussion of clinical and nonclinical needs of the patient in as their journey through a disease.<\/p>\n","protected":false},"author":6,"featured_media":1933,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[35,3],"tags":[143,142,148,98],"class_list":["post-1929","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-corporate","category-events","tag-patient-data","tag-patient-experience","tag-patient-program","tag-real-world-data"],"_links":{"self":[{"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/posts\/1929","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/comments?post=1929"}],"version-history":[{"count":27,"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/posts\/1929\/revisions"}],"predecessor-version":[{"id":2265,"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/posts\/1929\/revisions\/2265"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/media\/1933"}],"wp:attachment":[{"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/media?parent=1929"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/categories?post=1929"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/tags?post=1929"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}