{"id":1523,"date":"2019-01-10T10:58:37","date_gmt":"2019-01-10T10:58:37","guid":{"rendered":"https:\/\/perseivivarium.com\/blog\/?p=1523"},"modified":"2024-02-09T09:14:13","modified_gmt":"2024-02-09T09:14:13","slug":"committed-to-supporting-rare-disease-research-and-diagnostics","status":"publish","type":"post","link":"https:\/\/perseivivarium.com\/blog\/committed-to-supporting-rare-disease-research-and-diagnostics\/","title":{"rendered":"Committed to supporting rare diseases research and diagnostics"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;3.18.9&#8243;][et_pb_row custom_margin=&#8221;-70px||&#8221; _builder_version=&#8221;3.18.9&#8243;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.18.9&#8243; parallax=&#8221;off&#8221; parallax_method=&#8221;on&#8221;][et_pb_text _builder_version=&#8221;3.18.9&#8243;]<\/p>\n<h1>Committed to supporting rare diseases research and diagnostics<\/h1>\n<p>\u00a0<span>by Ana Rubial | Jan 10<\/span><span class=\"published\">, 2019 <\/span><span>\u00a0<\/span><\/p>\n<p>[\/et_pb_text][et_pb_image src=&#8221;https:\/\/perseivivarium.com\/blog\/wp-content\/uploads\/2019\/01\/Isabel-Gemio.jpg&#8221; _builder_version=&#8221;3.18.9&#8243;][\/et_pb_image][et_pb_text _builder_version=&#8221;3.18.9&#8243;]<\/p>\n<p><span style=\"font-weight: 400;\">At the end of the year, on November 27th, <a href=\"https:\/\/perseivivarium.com\">Persei vivarium<\/a> attended an important <a href=\"http:\/\/www.fundacionisabelgemio.com\/sobre-la-fundacion\">Isabel Gemio Foundation<\/a>\u2019s event at CaixaForum &#8211; the foundation was created by the leading journalist Isabel Gemio to <strong>raise awareness of rare diseases in Spain.<\/strong><\/span><\/p>\n<p><span style=\"font-weight: 400;\">At the event <strong>Persei vivarium<\/strong> had the opportunity to share with prominent scientists and physicians in the investigation of rare diseases. The two main takeaways were:<\/span><\/p>\n<ul>\n<li><span style=\"font-size: 14px;\">the need for basic research to understand much better the pathologies and thus find treatments was one of the main highlights.<\/span><\/li>\n<li style=\"font-weight: 400;\"><span style=\"font-weight: 400;\">the fast growing role of technology and its involvement in science.<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">And on a special note the event ended with a inspiring video clip made by young patients to show how their day to day is and the challenges they and their families and friends face.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The foundation deserves a lot of credit for <strong>making \u2018rare diseases\u2019 much more visible in our society. \u00a0<\/strong><\/span><\/p>\n<p>There are a lot of challenges for physicians, scientists, patients and their relatives. At Persei vivarium we can contribute through our technology to overcoming them.<\/p>\n<p><span style=\"font-weight: 400;\">To know more and support the work of this great foundation \u2018Isabel Gemio Foundation\u2019: <\/span><\/p>\n<p><span style=\"font-weight: 400;\"><a href=\"http:\/\/www.fundacionisabelgemio.com\/sobre-la-fundacion\">http:\/\/www.fundacionisabelgemio.com\/sobre-la-fundacion<\/a><a href=\"http:\/\/www.fundacionisabelgemio.com\/sobre-la-fundacion\">\u00a0(<span><\/span><\/a><a href=\"https:\/\/twitter.com\/FundIsabelGemio\">@FundIsabelGemio).<\/a><\/span><\/p>\n<p><span style=\"font-weight: 400;\">International information on Rare Diseases:\u00a0\u00a0<\/span><span style=\"font-weight: 400;\"><a href=\"https:\/\/rarediseases.org\/\">https:\/\/rarediseases.org\/<\/a><\/span><\/p>\n<p><span style=\"font-size: 14px;\"><\/span><\/p>\n<p><span style=\"font-size: 14px;\"><\/span><a href=\"https:\/\/twitter.com\/hashtag\/EnfermedadesRaras?src=hash\" style=\"font-size: 14px;\">#EnfermedadesRaras<\/a><span style=\"font-size: 14px;\">\u00a0<\/span><a href=\"https:\/\/twitter.com\/search?q=%23raredisease&amp;src=typd\" style=\"font-size: 14px;\">#raredisease<\/a><span style=\"font-size: 14px;\"> <\/span><a href=\"https:\/\/twitter.com\/search?q=%23RareAction&amp;src=typd\" style=\"font-size: 14px;\">#RareAction<\/a><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;3.0.48&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; custom_padding=&#8221;0|0px|27px|0px|false|false&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;3.0.47&#8243; parallax=&#8221;off&#8221; parallax_method=&#8221;on&#8221;][et_pb_text _builder_version=&#8221;3.19.8&#8243;]<\/p>\n<h4>Share<\/h4>\n<p>[\/et_pb_text][et_pb_code _builder_version=&#8221;3.19.8&#8243; link_option_url_new_window=&#8221;on&#8221;][\/et_pb_code][et_pb_team_member name=&#8221;Ana Rubial&#8221; position=&#8221;Account Manager&#8221; image_url=&#8221;https:\/\/perseivivarium.com\/blog\/wp-content\/uploads\/2019\/01\/Ana-Rubial-.jpeg&#8221; _builder_version=&#8221;3.18.9&#8243; link_option_url=&#8221;https:\/\/www.linkedin.com\/in\/ana-rubial-b4a41864\/&#8221; link_option_url_new_window=&#8221;on&#8221;]<\/p>\n<p>Persei vivarium<\/p>\n<p>[\/et_pb_team_member][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>At the end of the year, on November 27th, Persei vivarium attended an important Isabel Gemio Foundation\u2019s event at CaixaForum &#8211; the foundation was created by the leading journalist Isabel Gemio to raise awareness of rare diseases in Spain.<\/p>\n","protected":false},"author":2,"featured_media":1550,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[3],"tags":[124,125],"class_list":["post-1523","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events","tag-isabel-gemio-foundation","tag-rare-diseases"],"_links":{"self":[{"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/posts\/1523","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/comments?post=1523"}],"version-history":[{"count":24,"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/posts\/1523\/revisions"}],"predecessor-version":[{"id":2280,"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/posts\/1523\/revisions\/2280"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/media\/1550"}],"wp:attachment":[{"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/media?parent=1523"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/categories?post=1523"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/perseivivarium.com\/blog\/wp-json\/wp\/v2\/tags?post=1523"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}